Education Tools - Genetics
von Willebrand Disease - Tools for Health-care Providers and Patients
The U.S. Centers for Disease Control and Prevention (CDC) estimate that 1 to 2% of Americans are affected by von Willebrand Disease (VWD), the most common hereditary bleeding disorder. For women, it takes an average of 16 years to receive a diagnosis. The following tools for health-care providers and patients help to increase awareness of the signs and symptoms of VWD.
AANP von Willebrand Disease Resources
The following resources were developed by an NP advisory group convened by AANP with funding from CSL Behring.
- Von Willebrand Disease Pamphlet for HCPs (PDF) - Includes an overview of the signs and symptoms, types/severity, and hereditary patterns of the condition, and the basic guidelines for diagnosing and managing VWD.
- Von Willebrand Screening Questions (PDF) - A patient questionnaire for use when discussing a patient's symptoms or health history.
- Von Willebrand Disease Pamphlet for Patients/Consumers (PDF) - A tri-fold educational brochure for symptomatic/undiagnosed young women and their parents.
- Von Willebrand Disease Fact Sheet (PDF)
External von Willebrand Disease Resources
The following websites include information for patients with VWD and health-care providers. Inclusion of links does not imply AANP endorsement.
- Centers for Disease Control and Prevention
- Hemophilia Treatment Center (HTC) Directory
- National Heart, Lung, and Blood Institute
- National Hemophilia Foundation
- All About Bleeding