AANP conducted two surveys on the impact of COVID-19 on NPs.
- August 2020 Survey: AANP fielded its most recent survey between July 28 and August 9 to capture the latest information on COVID-19’s impact on NPs and NP practice. Approximately 4,000 NPs provided essential feedback to the association based on experiences in their own communities treating patients in evolving health care environments.
- May 2020 COVID-19 Survey: More than 4,800 NPs responded to the first COVID-19 Impact Survey between May 8 and May 18, 2020. The purpose of this survey was to gather information on how COVID-19 impacted NPs and NP practice, including testing needs, employment changes, treatment barriers and more. This information is essential as AANP works to address the challenges faced by NPs in the current environment, including advocating for the removal of practice barriers.
AcademyHealth is supporting a new initiative that aims to build a COVID-19 Patient Data Registry Network. The goal of the network is to provide researchers, policymakers and clinicians with quality information on the impact and progression of COVID-19.
AcademyHealth has also identified priority research questions on COVID-19 for health systems. The report includes questions on how COVID-19 is impacting health system policies, processes, providers and patient care.
American Association for Public Opinion Research
The American Association for Public Opinion Research has released guidance for survey researchers and IRBs. The guidance covers risks and benefits for survey participants, informed consent, mandatory reporting and incentives.
Association for the Accreditation of Human Research Protection Programs (AAHRPP)
AAHRPP has issued guidance how to protect research participants and report any study changes to an Institutional Review Board (IRB). AAHRPP’s suggestions align with the Food and Drug Administration’s guidance on conducting clinical trials during the COVID-19 pandemic.
COVID-19 Global Rheumatology Alliance
The Alliance is in the process of creating a secure, de-identified, international case reporting registry in order to help guide rheumatology clinicians in assessing and treating patients with rheumatologic disease and in evaluating the risk of infection in patients on immunosuppression.
EBSCO has created a COVID-19 Information Portal to support the immediate need for trusted health care information during the pandemic. This includes open access resources and research, clinical care information and data maps and visualizations.
The FDA has released guidance for industry, investigators and institutional review boards (IRBs) interested in conducting clinical trials of medical products during the COVID-19 public health emergency.
A collection of preprint journal articles and other resources related to COVID-19 are available from Health Affairs. Additionally, several published journal articles are available at no cost to the public.
Institute for Healthcare Improvement (IHI)
IHI offers COVID-19 guidance and resources for health care providers, including a free weekly learning hour on COVID-19, a data dashboard on the trajectory of COVID-19 reported deaths and a daily call for health care providers working in nursing homes.
To assist researchers and clinicians, The Lancet has established a COVID-19 Resource Centre. Articles and podcasts on the effects of the virus on prisoners, misinformation and vaccine development are available for free.
To promote open access and share key information on COVID-19 research, medRxiv is preprinting research articles. While articles should not be used to guide clinical practice or health-related behavior, since they have not yet been peer reviewed, they can be used to start a dialogue on current and future COVID-19 research.
The National Institute of Allergy and Infectious Diseases (NIAID), part of the NIH, has launched a COVID-19 Prevention Trials Network (COVPN) for vaccines, and other prevention tools, with the aim of enrolling in thousands of volunteers in large-scale clinical trials testing. Individuals can securely volunteer for studies on the NIH website.
- The NIH Office of Intramural Research has created a COVID-19 Scientific Interest Group. Scientists within the NIH are invited to contribute to the group to exchange information concerning research on COVID-19 and SARS-CoV-2.
- The NIAID has released the four key priorities of its strategic plan for COVID-19 research, which include improving our knowledge of SARS-CoV-2 and COVID-19; developing rapid, accurate diagnostics and assays to identify and isolate COVID-19 cases and track the spread of the virus; characterizing and testing potential treatments for COVID-19; and developing safe and effective vaccines for SARS-CoV-2 outbreaks both now and in the future.
- The NIH initiative, Rapid Acceleration of Diagnostics (RADx), is designed to speed innovation, development and commercialization of testing technologies related to COVID-19 and is supported through a $1.5 billion investment from federal stimulus funding.
National Library of Medicine
A number of drugs are under investigation in clinical trials or are being considered for clinical trials to treat COVID-19.
- Researchers have identified the genomic features of SARS-CoV-2 (as well as other high-fatality coronaviruses) to distinguish the virus that causes COVID-19 from other members of the coronavirus family.
- LitCOVID is the NIH and NLM literature hub for up-to-date research articles about COVID-19. The articles are updated daily and are categorized by different research topics and geographic locations.
The PCORI Healthcare Worker Exposure Response & Outcomes (HERO) Registry is a large, national clinical research community. It invites health care workers from across the U.S. to share clinical and life experiences to understand the perspectives and problems they face on the COVID-19 pandemic front lines. HERO Registry participants could have the opportunity to participate in future research studies to improve our understanding of COVID-19 and beyond, generating evidence to help keep healthcare workers safe and healthy. The first study, the HERO-HCQ Trial, will invite 15,000 health care workers from the registry to evaluate whether hydroxychloroquine can prevent COVID-19 infections.
In May, the PCORI Health Care Horizon Scanning System (HCHSS) expanded to include information on COVID-19-related preventive measures, diagnostics, treatments and management strategies. The HCHSS will release biweekly COVID-19 briefs for the next 12 months.
Primary Care Collaborative and The Larry A. Green Center
Results from the Primary Care Collaborative and The Larry A. Green Center survey indicate that many clinicians do not have adequate testing capabilities and personal protective equipment. The results also reflect that lack of information on the prevalence of COVID-19 in the U.S.
World Association for Public Opinion Research (WAPOR)
Public opinion research on COVID-19 is being conducted all over the world. Reports from those studies have been collected by WAPOR from Gallup Pakistan, Kstat, Taiwan Public Opinion Foundation, Pew Research Center and other research institutes. The list is publicly available and still accepting research studies.